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Scientists seeking subjects for research can e-mail us at LowellTerryAnderson@yahoo.com. We have subjects in 30 states, Canada, and the UK. The information that researchers provide the Registry will be forwarded to interested subjects. Geographical location, age of subject, number of subjects, type of research should be described in the e-mail. Researchers should note the Registry's privacy policy of introducing subjects to the researchers. All of Registry information is confidential and will not be made available without the expressed consent of the families. Anyone indicating an interest in being a subject will be contacted by the Registry should there be a match between a family and a researcher's interest. The Registry will explain the purpose of the research. It will be up to the familiy as to whether they wish to contact the researcher.